The parent perspective of antenatal counselling for expected preterm delivery: A qualitative study
This article outlines a questionnaire-based study looking at the parent perspective of antenatal counselling for expected preterm delivery. The authors believe it is the first study of its kind in the UK population.
Dr Jane LawsonST7 Neonatal Grid Trainee, Sheffield Children’s Hospital
jane.lawson8@nhs.net
Dr Mark Winton
Consultant Paediatric Intensivist,
Leeds PICU and Embrace Transport Service
Dr Kirsty Sayer
ST8 Neonatal Grid Trainee,
Leeds Centre for Newborn Care
Dr Caroline Fraser
ST8 Neonatal Grid Trainee,
Leeds Centre for Newborn Care
Dr Lauren Barker
ST4 Paediatric Trainee,
Rotherham District General Hospital
Dr Tamanna Williams
Neonatal Consultant,
Jessop Wing, Sheffield
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Keywords
neonate; antenatal counselling; thematic analysis
Key points
- Parents identified significant barriers to retaining information delivered during antenatal counselling, including pain, medication and information overload.
- Parents felt overwhelmed by the neonatal unit environment and underprepared for their role.
- Resources including video tours should be a key part of any antenatal counselling package of care.
- Parents felt that the participation of neonatal nurses in the counselling process would be beneficial.
Also published in Infant:
VOLUME 17/ISSUE 2, MARCH 2021
Receiving a lifelong diagnosis at birth can be viewed as the starting block from which a life is built and lived. We present the case of a preterm neonate born with a severe skeletal dysplasia in an endeavour to understand the challenges facing the different aspects of care provision, management and treatment in the special care baby unit at Calderdale Royal Hospital. Encompassing the experiences of the staff/parent relationship, we hope to initiate discussion about how best to accommodate such babies on the unit and hypothesise approaches to improving care to stand the family in good stead for their lifelong journey.
