Infant Journal
for neonatal and paediatric healthcare professionals

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Keywords
family-centred care; complex care neonate; skeletal dysplasia; phocomelia; disability
Key points
  1. The ways in which we manage complex care neonates can have long-lasting and wide-reaching consequences.
  2. Neonatal healthcare professionals must always deliver holistic patient and family-centred care.
  3. Our commitment and responsibility to care should not end once a family leaves the acute setting.