NCARDRS reports prevalence of congenital anomalies in England

The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) is a comprehensive registration service that collects and quality assures data on congenital anomalies and rare diseases in England. The sixth annual congenital anomaly statistics report released by NCARDRS is the third report to contain national data for the whole of England. The report contains information on congenital anomalies detected in babies delivered between 1 January and 31 December 2020.

Total prevalence and live birth prevalence are two important measures. A total of 13,065 babies with one or more congenital anomalies were notified to NCARDRS in 2020 out of 589,454 total births (live births and stillbirths) in England. This gives an overall birth prevalence of congenital anomalies of 221.7 per 10,000 total births. This reflects one baby diagnosed with a congenital anomaly for every 45 births (live births and stillbirths).

The report is a vital resource for commissioners and providers of health care involved in the diagnosis and management of babies with congenital anomalies. It also provides high quality data for researchers and those seeking detailed information about congenital anomaly prevalence in England.

To read the report visit: https://digital.nhs.uk/data-and-information/publications/statistical/ncardrs-congenital-anomaly-statistics-annual-data/ncardrs-congenital-anomaly-statistics-report-2020