Neonatal Research Priority Setting Partnership: help wanted

Katie Evans
Neonatal Research Priority Setting Partnership Project Co-ordinator and Clinical Research Fellow in Neonatal Medicine at Chelsea and Westminster Hospital
katie.evans7@nhs.net

Chris Gale
Academic Neonatologist and Neonatal Society Meeting Secretary

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Keywords

perinatal post-mortem consent; consent training; bereavement care

Key points

National recommendations state that all consent takers should be trained and specifically approved to take consent for a post-mortem examination. A lack of specialist training is a barrier to consent.
Our survey found that the Sands pre-requisites for training consent takers are not being met. Consent takers desire standardised, accessible and free training. Encompassing the findings, an interactive e-learning resource has been developed to meet the consent takers’ needs.

Also published in Infant:

VOLUME 3/ISSUE 4, JULY 2007

Care for good days, difficult days, last days and beyond – hospice care for life-limited youngsters

Support and respite for families of life-limited children is rare and diminishing. Hospices fulfil a vital role in providing physical, emotional and spiritual support to parents and siblings. When a child is diagnosed with a life-limiting condition, families often feel isolated and helpless. Naomi House is one of 39 children’s hospices in England and Wales that provides one-to-one palliative care that includes respite, terminal and bereavement care and support. It offers a holistic approach to care with an emphasis on enhancing the lives of life-limited children.