Neonatal Research Priority Setting Partnership: help wanted
Katie Evans
Neonatal Research Priority Setting Partnership Project Co-ordinator and Clinical Research Fellow in Neonatal Medicine at Chelsea and Westminster Hospital
katie.evans7@nhs.net
Chris Gale
Academic Neonatologist and Neonatal Society Meeting Secretary
Full text available by subscription ...
Subscribe

Please subscribe and log in to see the full article.
Keywords
perinatal post-mortem consent; consent training; bereavement care
Key points
- National recommendations state that all consent takers should be trained and specifically approved to take consent for a post-mortem examination. A lack of specialist training is a barrier to consent.
- Our survey found that the Sands pre-requisites for training consent takers are not being met. Consent takers desire standardised, accessible and free training. Encompassing the findings, an interactive e-learning resource has been developed to meet the consent takers’ needs.
Also published in Infant:
VOLUME 3/ISSUE 4, JULY 2007
Support and respite for families of life-limited children is rare and diminishing. Hospices fulfil a vital role in providing physical, emotional and spiritual support to parents and siblings. When a child is diagnosed with a life-limiting condition, families often feel isolated and helpless. Naomi House is one of 39 children’s hospices in England and Wales that provides one-to-one palliative care that includes respite, terminal and bereavement care and support. It offers a holistic approach to care with an emphasis on enhancing the lives of life-limited children.
