Infant Journal
for neonatal and paediatric healthcare professionals

Care for good days, difficult days, last days and beyond – hospice care for life-limited youngsters

Support and respite for families of life-limited children is rare and diminishing. Hospices fulfil a vital role in providing physical, emotional and spiritual support to parents and siblings. When a child is diagnosed with a life-limiting condition, families often feel isolated and helpless. Naomi House is one of 39 children’s hospices in England and Wales that provides one-to-one palliative care that includes respite, terminal and bereavement care and support. It offers a holistic approach to care with an emphasis on enhancing the lives of life-limited children.

Eileen Thomas and Rhian French