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Volume 16/Issue 1, January 2020

Neonatal loss – our journey

Susan Spencer


The following article is deeply sad and many will find it traumatic. Sixteen years ago Susan Spencer gave birth to Tobias at just 30 weeks’ gestation. Sadly Tobias developed necrotising enterocolitis (NEC) and died. Tobias’ unique journey with NEC is described through the eyes and heart of his mother. Here, Susan shares her personal and moving story in the hope that her reflections might be insightful for neonatal healthcare professionals.

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